Ishwari Rasaily embodies remarkable courage. While many mothers display fierce determination for their children, Ishwari’s resolve is particularly notable given her challenging circumstances. In the rural setting of Tilpun VDC in Ramechap, Nepal, standing up for a child with a disability can be an immense struggle.
Ishwari’s journey began with her daughter Ritika Rasaily, who was born with normal vision. However, at the age of three, Ritika’s eyesight deteriorated after a bout of high fever, which led to a diagnosis of typhoid at Kanti Children’s Hospital in Kathmandu. Despite treatments, Ritika’s condition worsened, prompting Ishwari to seek further medical opinions at International Friendship Children’s Hospital in Kathmandu.
It was during these examinations that Ishwari first noticed a troubling sign: Ritika struggled to identify a boiled egg by touch. Initially in denial, Ishwari tried various objects and foods in front of her daughter, hoping to see some sign of recognition. The painful realization that Ritika was cannot see hit Ishwari hard, leaving her devastated and consumed by worry for her daughter’s future.
Faced with the grim diagnosis from Tilganga Eye Hospital and Tribhuvan University’s Teaching
Hospital, Ishwari returned to Ramechap with a heavy heart. Without her husband Phalay Kami,
who was working in Malaysia, Ishwari shouldered the responsibility alone. She adapted her daily
life to accommodate Ritika’s needs, carrying her while working in the fields and attending to
household chores.
Adding to her challenges, Ishwari faced significant resistance from her in-laws and the
community. They dismissed her efforts as futile, accusing her of wasting time and even
suggesting infidelity. Their lack of support and harsh judgments, including accusations that she
would leave her husband, compounded Ishwari’s struggles.
Despite these adversities, Ishwari remained undeterred. Driven by an unwavering commitment to
her daughter, she sought financial help from relatives. Her uncle, who ran a shop in Bhaktapur,
informed her about the Community Based Rehabilitation organization, B. P. Eye Foundation’s
(BPEF) Hospital for Children Eye and ENT Services (CHEERS). With the support of her mother
and uncle, Ishwari managed to get Ritika admitted to the Rehabilitation Unit (Enabling Centre)
of organization.
At BPEF-CHEERS, Ritika underwent a comprehensive evaluation. The initial assessment
revealed several challenges: difficulty walking, instability while sitting, reluctance to interact
with others, and ongoing breastfeeding. The Enabling Centre provided a tailored five-month
training program for Ritika, during which her progress exceeded expectations. She completed the
program in just three and a half months, impressing everyone with her rapid development.
Ritika’s graduation in June 2017 during BPEF-CHEERS’s 15 th Graduation Ceremony was a
poignant moment. Ishwari’s emotional recounting of her struggles moved many. Her perseverance and courage were commendable, especially given the obstacles she faced. Ishwari’s
efforts ensure that Ritika now has the opportunity to receive an education and a bright future.
Today, Ritika is enrolled in Adarsha Saula Yubak Higher Secondary School in Bungamati, Lalitpur, with plans to join Sanjiwani Higher Secondary School in Dhulikhel, Kavre, after the Dasain Festival. Ritika dreams of becoming a teacher to inspire and educate young children.
Ishwari’s relentless courage and determination serve as an inspiration. Her journey highlights the
need for more advocates who will fight for the education and rights of children with disabilities
in challenging environments like Nepal. We extend our heartfelt wishes to Ritika and applaud
Ishwari for her extraordinary strength and dedication.
By Anuja Upadhyay
